A spoonie is a person with a (very) limited amount of energy due to illness, often chronic.
So by now you probably figured out that I’m a spoonie, because I talked about it and because of, well, the name of the blog is kind of giving it away. I have ME/cfs (no, we’re not going to discuss whether or not that is an accurate name for the illness or not, spoonies). I will blog about what exactly that means in another post. Here is a list of things I discovered in the two years I’ve been a spoonie.
You know you’re a spoonie when…
- You always feel like you’re walking through water. Or swimming upstream. Or whatever metaphor you like to use when explaining to people how you feel on a daily basis. You’re struggling to do the tiniest things – like getting dressed, making breakfast, getting a glass of water from the kitchen etc.
- You know a lot about nutrition. It’s actually a very interesting topic, don’t you think? I would have never known so much about it if I hadn’t been ill.
- You lost things you loved. Might be the ability to read, or to excersize. Things are different now and you have to fill your time with different things. You don’t take things for granted anymore.
- You lost people you loved. I hope you didn’t, but chances are you did. You probably lost friends because you can never see them or they’re tired of you cancelling all the time. Sure, they get it, but do they stick around? That’s another question entirely.
- Relationships change – sometimes for the better. You are not the only one affected by your illness and lack of energy. Your surroundings are too. Maybe your boyfriend needs to pick up some extra chores on top of his fulltime job or studies, and your friends need to accept that maybe a movie night is the only thing you feel good enough for nowadays. Things changed, also for them. But maybe you find out how strong your relationships actually are. I know I have.
- You discover new things. Personally, I learned a lot of things I never expected I’d be doing. Like knitting and crocheting, which I love (no, that’s not only for old people. It’s actually very “in” right now!). Never expected to be a blogger either. What did you discover?
- You know people all over the world – pretty intimately too. The spoonie community is spread all over the world and I gained so many awesome friends. I might never actually meet them (although I hope I will!), but knowing they’re just one text away, is very comforting. They know what you’re talking about and understand you completely.
- People don’t believe you. Is it really so bad you can’t work or go to school? You’re like… 20. You shouldn’t be at home all the time. In my days we had it rough. Your body is young, you should be fine to live your life like you’re supposed to. Yeah, dude. Change of plans. I don’t like it either.
- You’re on the internet. A lot. It’s only normal in this day and age though right?
- Your pets are your best friends. I honestly wouldn’t know what to do without my dog and my cat. The house would be so empty if I were the only one in it. I’d probably forget how to use my voice. I’d never go outside. I’d be way more ill, probably.
I hope you recognized a few things (preferably the positive ones) and feel acknowledged in how you feel. That is so important. And I hope you reach out to someone if it gets a bit to much for you (you can always contact me through social media or my e-mail adress email@example.com).
Have a great week! Don’t forget to follow me on social media and I’d love it if you share or comment!
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