Spoonieposts

You know you’re a spoonie when…

A spoonie is a person with a (very) limited amount of energy due to illness, often chronic.

So by now you probably figured out that I’m a spoonie, because I talked about it and because of, well, the name of the blog is kind of giving it away. I have ME/cfs (no, we’re not going to discuss whether or not that is an accurate name for the illness or not, spoonies). I will blog about what exactly that means in another post. Here is a list of things I discovered in the two years I’ve been a spoonie.

You know you’re a spoonie when…

  1. You always feel like you’re walking through water. Or swimming upstream. Or whatever metaphor you like to use when explaining to people how you feel on a daily basis. You’re struggling to do the tiniest things – like getting dressed, making breakfast, getting a glass of water from the kitchen etc.
  2. You know a lot about nutrition. It’s actually a very interesting topic, don’t you think? I would have never known so much about it if I hadn’t been ill.
  3. You lost things you loved. Might be the ability to read, or to excersize. Things are different now and you have to fill your time with different things. You don’t take things for granted anymore.
  4. You lost people you loved. I hope you didn’t, but chances are you did. You probably lost friends because you can never see them or they’re tired of you cancelling all the time. Sure, they get it, but do they stick around? That’s another question entirely.
  5. Relationships change – sometimes for the better. You are not the only one affected by your illness and lack of energy. Your surroundings are too. Maybe your boyfriend needs to pick up some extra chores on top of his fulltime job or studies, and your friends need to accept that maybe a movie night is the only thing you feel good enough for nowadays.  Things changed, also for them. But maybe you find out how strong your relationships actually are. I know I have.
  6. You discover new things. Personally, I learned a lot of things I never expected I’d be doing. Like knitting and crocheting, which I love (no, that’s not only for old people. It’s actually very “in” right now!). Never expected to be a blogger either. What did you discover?
  7. You know people all over the world – pretty intimately too. The spoonie community is spread all over the world and I gained so many awesome friends. I might never actually meet them (although I hope I will!), but knowing they’re just one text away, is very comforting. They know what you’re talking about and understand you completely.
  8. People don’t believe you. Is it really so bad you can’t work or go to school? You’re like… 20. You shouldn’t be at home all the time. In my days we had it rough. Your body is young, you should be fine to live your life like you’re supposed to. Yeah, dude. Change of plans. I don’t like it either.
  9. You’re on the internet. A lot. It’s only normal in this day and age though right?
  10. Your pets are your best friends. I honestly wouldn’t know what to do without my dog and my cat. The house would be so empty if I were the only one in it. I’d probably forget how to use my voice. I’d never go outside. I’d be way more ill, probably.

I hope you recognized a few things (preferably the positive ones) and feel acknowledged in how you feel. That is so important. And I hope you reach out to someone if it gets a bit to much for you (you can always contact me through social media or my e-mail adress thehappyspoonieproject@outlook.com).

Have a great week! Don’t forget to follow me on social media and I’d love it if you share or comment!

 

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14 Comments

  1. Melissa

    I didn’t realize I was a spoonie until I checked out your blog. Turns out I am. Every woman over the age of 40 in my dad’s side of the family suffers from GSM. We affectionately call it the family curse. Every day I wake up wondering what my pain level will be and what I’ll be capable of doing. And the brain fog…omg! It’s frustrating! I love crocheting! I’m working on baby blankets for my local hospital right now. I’ve already done a half dozen for my first grandchild that’s due in August. Crocheting distracts me from the pain, especially when I have music or an audiobook playing. Thank you so much for your blog. It’s been incredibly helpful and I don’t feel like I’m alone in this anymore.

    1. Melissa

      Good grief…phone autocorrect sucks. I typed FMS, not GSM.

    2. admin

      Hi Melissa, I’m sooo glad my blog helped you in some way! That’s exactly why I do it. Come back any time and find me on social media if you’d like to stay in touch.

  2. I enjoyed your post, completely relatable. ☺

    1. admin

      Thank you so much! 🙂

  3. You write so eloquently about FMS. I can relate to all of what you have said in this posts, Keep inspiring! Helenx

    1. admin

      Thank you so much Helen! 🙂

  4. I really enjoy reading your posts. You have great insight and outlook. Thank you

    1. admin

      Thank you so much Danielle! 🙂 I love to know that you’re enjoying my posts! 🙂

  5. Thanks for the insight. I feel so terribly weak some days, and people just don’t seem to get it. But it’s awesome that we have this access to amazing communities all around the world.

    Is your blog names after the happiness project? It’s such an amazing book, I ♥ it

    1. admin

      You’re a spoonie too? I had no idea! So sorry. Yes it is named after The Happiness Project, I’m kind of obsessed with that book :’) have a great weekend!

  6. I didn’t know what a spoonie means. You explained it well. Crochet and knitting are for everybody. those are very addictive hobbies. Glad that you are learning new things and sharing these blog posts.

  7. I did not know what a spoonie was, but turns out I am one! Dealing with chronic pain and chronic illness in more systems of my body than one. I relate to this post so so much. Thank you for sharing.

    1. admin

      I’m so glad I could help you realize this! There are some lovely spoonie communities on internet if you’re interested. Just let me know! And I’m sorry about your illness, chronic pain must be terrible.

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